Watch the 2023 UCSD KD Parent Symposium (Virtual Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually. Timestamps for presentations and sessions throughout the event...
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2022 UCSD KD Parent Symposium Q&A Session Watch the annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center via the link below, or scroll down to read the transcribed questions and...
Watch the 2022- UCSD KD Parent Symposium (Virtual & In-Person Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually and in-person. Video Time Stamp Speaker...
Ask the KD Experts: Are there any updates on the safety of the COVID-19 vaccine for children and adults with a history of Kawasaki disease? New inquiries regarding updates on the safety of the COVID-19 vaccine in children and...
Watch the 2021- UCSD KD Parent Symposium (Virtual Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually via Zoom. Video Time Stamp Speaker Topic 00:00:00...
Ask the KD Experts: Is the COVID-19 vaccine safe for children and adults with a history of Kawasaki disease? The following update was provided by Jane Burns, M.D. Professor and Director, Kawasaki Disease Research Center. We understand that there...
2020 UCSD KD Parent Symposium (Virtual Event) Q&A Session Watch the annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center via the link below, or scroll down to read the transcribed...
Watch the 2020- UCSD KD Parent Symposium (Virtual Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually via Zoom. Video Time Stamp Speaker Topic 0:05:15...
Ask the KD Experts: KD & COVID-19 Update The following update was provided by Jane Burns, M.D. Professor and Director, Kawasaki Disease Research Center. June 23, 2020 1. KD patients who are well, healthy people, with normal functioning hearts...
Dear KD Parents, There has been a lot of recent media attention regarding a pediatric inflammatory shock syndrome linked to COVID-19 that appears to affect a few patients who share some features of Kawasaki Disease, including coronary artery aneurysms...
Ask the KD Experts: KD & COVID-19 Latest News Dear KD Parents, We wanted to reach out to provide information and reassurance to our KD parents in light of new information that is emerging about children who develop a...
Ask the KD Experts: Biomarkers of Inflammation and Fibrosis in Kawasaki Disease Patients Years After Initial Presentation With Low Ejection Fraction Question: Can you please explain the results of a recent study published titled “Biomarkers of Inflammation and Fibrosis...
Ask the KD Experts: Kawasaki Disease and COVID-19 Question: Is my KD child more at risk to COVID-19 than the general population? Answer: Children who have had KD go on to be immunologically normal in their response to viruses,...
Ask the KD Experts: Kawasaki Disease and Z Scores Question: What is a Z score? Answer: A Z score normalized for body surface area represents how much larger (or smaller) a measured coronary artery internal diameter is compared to the...
Ask the KD Experts: Kawasaki Disease an Autoimmune Disease? Question: Is Kawasaki disease an autoimmune disease? Answer: The term “autoimmune” disease is used to describe diseases in which the primary immune response is to “self.” That means that the...
Ask the KD Experts: Kawasaki Disease and Long Term Effects Question: My daughter is now 12. She had Kawasaki disease when she was four years old. After treatment and the follow-up tests, they determined that she did not suffer...
Ask the KD Experts: Kawasaki Disease and Hearing Loss Question: Our son was diagnosed with KD January 2007, he was 2 years 9 months old. After presenting with all the symptoms was treated with IVIG on the fifth day....
Ask the KD Experts: Kawasaki Disease and Calcium Testing Question: I had KD when I was 2. I am now 22 and have had several weird heart issues that they weren’t identifiable with an echo since then. I was...
Ask the KD Experts: Kawasaki Disease and Vision Loss Question: I wanted to ask if you could please provide some feedback on vision loss due to KD. There’s been a story surfacing these past few days of a blind...
Ask the KD Experts: Kawasaki Disease and Vaccines Question: Hello. I was wondering if you can share any information regarding Kawasaki disease and immunizations after onset. My son is 16 years old. He had Kawasaki disease when he was...
KDF Youth Fall Internship Program POSITION DESCRIPTION: The Kawasaki Disease Foundation (KDF) is accepting applications for three part-time positions for our KDF Youth Program. LOCATION: 100% Remote/Online, must reside in the United States. SCHEDULE/SHIFT: Flexible, 4-8 hours per week, with optional attendance...
KDF Youth Summer Internship Program POSITION DESCRIPTION: The Kawasaki Disease Foundation (KDF) is accepting applications for three part-time positions for our KDF Youth Program. LOCATION: 100% Remote/Online, must reside in the United States. SCHEDULE/SHIFT: Flexible, 5-10 hours per week, with optional attendance...
Kawasaki Disease Foundation Internship Program POSITION DESCRIPTION: The Kawasaki Disease Foundation (KDF) is accepting applications for one part-time position in communications and administration. APPLICATION DEADLINE: The recruitment for this position will begin on June 7, 2024 and may close on or...
Dr. Tomisaku Kawasaki Memorial Scholarship Recipient: Aditya Gupta Scholarship Recipient: Aditya Gupta Scholarship Year: Fall 2024-Spring 2025 Scholarship Type: High school student entering a university University Name: Tufts University Scholarship Amount: $5,000 Aditya Gupta’s journey into the medical field was...
Dr. Tomisaku Kawasaki Memorial Scholarship Recipient: Julia Fitzgerald Scholarship Recipient: Julia Fitzgerald Scholarship Year: Fall 2024-Spring 2025 Scholarship Type: Student currently enrolled in a university University Name: University of Illinois Urbana-Champaign Scholarship Amount: $10,000 Julia Fitzgerald was diagnosed with Kawasaki disease (KD) in 2006...
Announcing the Dr. Tomisaku Kawasaki Memorial Scholarship Presented by the Kawasaki Disease Foundation Scholarship award(s): $5,000 scholarship for high school students, $10,000 scholarship for college students. Application deadline: April 30, 2024 Award date: Fall 2024 semester The Dr. Tomisaku...
International Kawasaki Disease Symposium (IKDS) 2024 Patient/Caregiver Survey The 14th International Kawasaki Disease Symposium (IKDS) will take place from August 26-29, 2024, in Montreal, Canada. The Kawasaki Disease Foundation and Kawasaki Disease Canada are proud to support the first...
The KDF Youth program of the Kawasaki Disease Foundation is searching for new members! If you are a young person passionate about raising awareness for KD, hosting online and in-person fundraisers, learning social media communication skills, and earning volunteer...
Cookies 4 Kawasaki – KDF Youth Donates Items for Kawasaki Patients at Rady Children’s Hospital, San Diego In 2022, the KD Foundation’s KDF Youth organized Cookies4Kawasaki – a fundraiser raising money to make a difference in the lives of...
The Venice 6 – Event Recap The Venice 6 fundraising event held on Sunday, November 13, 2022, at Venice Beach, CA, benefitting the Kawasaki Disease Foundation, was super fun for all those who attended and had a fantastic turnout....
Gregory Chin, founder and president of the Kawasaki Disease Foundation, retires Under his leadership, the KD Foundation has donated over half a million dollars to KD research over the past 21 years. Gregory Chin, founder and president of the...
KDF Youth Highlights KDF Youth is a KD Foundation program created by youth for youth. The group was launched in September 2020 to increase Kawasaki Disease (KD) awareness among youth and teenagers. Since its inception, the group has met...
Over Half A Million Dollars Donated to Kawasaki Disease Research Thanks to YOU, we have contributed $532,000 to advancing KD research; most significantly, we provided a grant to the Kawasaki Disease Research Center at the University of California San Diego...
Kawasaki Disease Awareness Day is Today – Wednesday, January 26, 2022! Twelve years ago, the Kawasaki Disease Foundation requested to have January 26th designated as KD Awareness Day. Senator Jim Webb of Virginia and Daniel Inouye of Hawaii sponsored...
January 26th is National Kawasaki Disease Awareness Day Join the Kawasaki Disease Foundation in raising awareness for Kawasaki Disease from January 1st to 26th, 2022 How YOU can HELP: Be a part of the Wear Your Heart on Your...
To ALL our KD Community who helped raise Kawasaki disease awareness on the 11th National KD Awareness Day, January 26, 2021 – THANK YOU! Together, we helped raise awareness of KD by sharing symptoms and KD facts posts, sharing...
Qualifying for Disability Benefits with Kawasaki Disease By: SSD Help Twitter: @DisabilityGuide If your child has Kawasaki disease (KD) and you are finding that he or she is having difficulty in school and medical bills are piling up, you...
2019 Kawasaki Disease Awareness Challenge Participant Results The Foundation thanks our 2019 KDAC challenge participants. We are grateful for YOUR support and appreciate the time and energy YOU dedicated to helping raise awareness and funds for Kawasaki disease. Together...
The 6th KD Summit of India/ 1st Annual Conference of the Kawasaki Disease Society of India Written by Dana Bell Fairfield, CA The 6th Kawasaki Disease Summit of India and the First Annual Conference of the Kawasaki Disease Society...
Event Recap: International Kawasaki Disease Symposium, Yokohama, Japan This past June 2018, 485 participants from 32 countries gathered in Yokohama, Japan for the 12th International Kawasaki Disease Symposium (IKDS). The 3 ½ day conference covered Kawasaki disease (KD) issues...
Recap of the KDF’s ‘To Save a Child’s Heart’ East Coast Gala The first east coast KDF gala was one to remember! And quite unexpectedly, the memories began even before our guests arrived. As we were setting up in...
KDF Newsletter, Summer 2024 In This Issue: 1. UCSD Adult Kawasaki Disease Study Needs Control Participants 2. Cardiac Clinic at SickKids Needs Online Survey Participants 3. Announcing the Dr. Tomisaku Kawasaki Memorial Scholarship Recipients 4. Upcoming Virtual Events: Navigating...
KDF Newsletter, April 2024 In This Issue: 1. 13th National Kawasaki Disease Awareness Day 2. KD Cases Increase at Rady Children’s Hospital, San Diego 3. Pharmacogenomics of IVIG Response in KD 4. Watch the 2023 UCSD KD Parent Symposium...
October 2023, Volume 1, Issue 1 In this issue: 1. KD Research Updates — KD Aneurysms & Transition of Care; 2. Dr Portman Explains How Cardiac Disease Differs Between Pediatric, Adult Patients; 3. Upcoming KD Events: 2023 UCSD KD...
KDF Newsletter April 2022, Volume 1, Issue 1 In this issue: 2022 Kawasaki Disease Awareness Campaign Results; KDF Founder & President; Gregory Chin’s Retirement; Union University College of Pharmacy KD Awareness Fundraiser; KDF Youth Highlights; Lisa Connelly Case Study:...
KD Awareness Advocates: Mckenzie Graham In the Fall of 2019, the Foundation was approached by Mckenzie Graham and her mother who expressed interest in contributing to KD awareness. Mckenzie’s younger sister, Savannah, was diagnosed with Kawasaki disease at the...
Dear KD Families, It’s with a heavy heart that we share news of the passing of Donna Collins after a long battle with cancer. For those of you who didn’t know Donna, it’s our honor to share a little...
KD Awareness Advocates: Michael Lau My name is Dr. Michael Lau, and I’m a licensed pharmacist currently completing a Post-Graduate Year 1 (PGY-1) Residency at NYU Winthrop Hospital. Throughout the course of the year, residents complete rotations in various...
New Rochelle, NY: Bringing awareness to Kawasaki disease During the KDF’s 26 days of Kawasaki Disease Awareness campaign, KD mom, Danielle Foster contacted us for support in raising KD awareness. Danielle decided to host an awareness fundraiser for KD...
KD Parent Spotlight: Aubry Shackelford At the age of five, my daughter Allison was diagnosed with Kawasaki Disease. Like many other KD parents, her mother Jean had to become relentless in her pursuit of a diagnosis when initial visits...
¡Aproveche la oportunidad de unirse al Simposio anual para padres sobre la enfermedad de Kawasaki en línea a través de Zoom! Obtenga información valiosa sobre la enfermedad de Kawasaki, manténgase actualizado sobre las últimas investigaciones y tratamientos de KD...
UCSD Annual Kawasaki Disease Parent Symposium What: UCSD Annual Kawasaki Disease Parent Symposium When: Saturday, October 5, 2024, from 9:00 am to 12:00 pm pst/12:00 pm to 3:00 pm est Where: Online via Zoom Click here to register>> Q&A session will...
Fostering Global Collaborations to Solve Kawasaki Disease Join us on June 25th at 1:30 PM ET / 10:30 AM PT for a conversation with Dr. Adriana Tremoulet and Dr. Nagib Dahdah, the Presidents of the 14th International Kawasaki...
There is still time to register for the 2023 Kawasaki Disease Parent Symposium! What: UCSD 2023 Kawasaki Disease Parent Symposium When: Saturday, November 4, 2023, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center...
1st International Kawasaki Disease Registry & EUROKiDs Joint Meeting What: 1st International Kawasaki Disease Registry & EUROKiDs Joint Meeting When: Thursday, November 2nd to Saturday, November 4th Where: Online (100 Euros discounted virtual attendance trainees, family members or members of family associations)...
You are invited to join the 2022 Kawasaki Disease Parent Symposium! What: UCSD 2022 Kawasaki Disease Parent SymposiumWhen: Saturday, October 29, 2022, from 9 am to 12 pm PSTWho: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D....
What: The Venice 6 (3 mile option available) When: Sunday, November 13, 2022 9:00 AM 3:00 PM Where: Windward Plaza 1 Windward Avenue, Los Angeles, CA, 90291 The Last 6 is back with its annual fundraiser run benefiting the...
What: UCSD 2022 Kawasaki Disease Parent Symposium When: Saturday, October 29, 2022, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research Center...
KDF See’s Candies Holiday Fundraiser KD Mom, Samantha Encinas, invites you to help raise funds to support the KDF’s mission via this online Yum-Raising Event! What: See’s Candies Holiday Fundraiser When: October 9, 2021 to December 3, 2021 Where: See’s Candies –...
What: UCSD 2021 Virtual Kawasaki Disease Parent Symposium When: Saturday, October 2, 2021, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research...
What: UCSD 2021 Virtual Kawasaki Disease Parent Symposium When: Saturday, October 2, 2021, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research...
Rady Children’s Hospital seeing increase in Kawasaki disease cases. Cause remains elusive. After experiencing a lull during the COVID-19 pandemic, clinicians at Rady Children’s Hospital have been somewhat surprised at the number of young children diagnosed with Kawasaki disease...
Kate Xu, KDF Youth President “Daily Point of Light” Honoree Kate Xu is a friendly, engaged 16-year-old who enjoys reading, photography, math and science. She has extraordinary piano skills that have led her to perform in Paris and at...
Heart surgery survivor shares road to recovery Paige Garnica was diagnosed with Kawasaki disease before her second birthday. Since then, she and her family have been advocating for Kawasaki disease awareness and funding and have remained involved in the...
Ellen Xu – KDF Youth Board President Honored as One of 25 Most Remarkable Teens in San Diego, CA One of our very own KDF volunteers, Ellen Xu, is definitely a ‘remarkable’ teen! San Diego leaders gathered together recently...
Same Treatment Tested for Kids with Kawasaki Disease and Rare COVID-19 Reaction In a pair of new studies, published online October 26 and August 31, 2021, two collaborating teams of researchers at University of California San Diego School of...
My son’s fight with Kawasaki disease taught me to trust my instincts (CNN)The latest pandemic news has many parents on edge. If we didn’t have enough to worry about already during this pandemic, parents now have another dire warning...
Rady Re-Evaluating Recent Kawasaki Cases For New Pediatric Illness Tied To Coronavirus San Diego’s Children’s Hospital is reviewing patients it recently treated for Kawasaki disease to determine if they were actually suffering from a similar but rare new illness connected...
Statement to the Media following the 2 May Pediatric Intensive Care-COVID-19 International Collaborative Conference Call With many parents throughout the world wondering about the new information presented by mainstream media regarding COVID-19 and Kawasaki Disease, we wanted to share...
Kawasaki Disease & Coronavirus (HCoV-NL63) We’ve learned that some of our community members have expressed concerns about a past coronavirus and Kawasaki disease. Some of you may recall several years ago researchers, Esper et al.’s announced a link between...
Join the Adult Kawasaki Study The Kawasaki Disease Research Center at the University of California, San Diego, is looking for participants for its Adult Kawasaki Study. This longitudinal study aims to investigate the long-term effects of KD in adults....
Adult Kawasaki Disease Study Needs Control Participants The Kawasaki Disease Research team at the University of California, San Diego is currently looking for individuals over the age of 18 who have no previous history of Kawasaki Disease. They are...
Pharmacogenomics of intravenous immunoglobulin response in Kawasaki disease Dr. Michael Portman recently presented findings from a groundbreaking study on Kawasaki disease (KD) at the Seattle Children’s Hospital KD Clinic. The study involved a whole genome sequencing of hundreds of...
KD Aneurysm & Transition of Care A group of experts led by Dr. Tremoulet from the Kawasaki Disease Research Center at the University of California, San Diego has published a manuscript through the American Heart Association. The manuscript highlights...
Dr Michael Portman Explains How Cardiac Disease Differs Between Pediatric, Adult Patients During an interview at the 2022 American Heart Association Scientific Sessions in Chicago, the different types of cardiac diseases that present in pediatric patients vs adult patients...
Tolerability of COVID-19 Infection and Messenger RNA Vaccination Among Patients With a History of Kawasaki Disease Study shows that mRNA vaccines may be safe, and COVID-19 may not be severe for patients with a history of KD. READ MORE...
Pharmacy alumni and faculty work with research team to develop North America’s first test to predict Kawasaki disease A new tool under development by University at Buffalo researchers could one day help clinicians better predict resistance to immunoglobulin therapy...
Kawasaki Disease Rates Dropped During COVID-19 Pandemic A study published by the Jama Network Open Pediatrics found that cases of Kawasaki disease (KD) in the United States dropped by 28% during the Covid-19 shelter in place orders. The decrease...
Formal plans needed to support teens with Kawasaki disease in transition to adult care According to the American Heart Association, an increasing number of children who developed coronary artery aneurysms from Kawasaki disease are becoming adults and require transitioning...
MIS-C and KD are on the same immune response continuum as COVID-19 A recent study revealed that MIS-C and KD are on the same immune response continuum as COVID-19, with MIS-C being a more severe version of the response...
Sudden cardiac death in adult with prior history of Kawasaki disease without coronary artery involvement: A case report Lisa Connelly was 37 when she passed away from a massive heart attack on November 29, 2015. The pathology report showed...
Infliximab versus second intravenous immunoglobulin for treatment of resistant Kawasaki disease in the USA (KIDCARE): a randomised, multicentre comparative effectiveness trial Summary Background Although intravenous immunoglobulin (IVIG) is effective therapy for Kawasaki disease, 10–20% of patients have recrudescent fever...
KD Newsletter from Dr. Jane Burns The KD Summer Newsletter from Dr. Jane C. Burns addresses updates on the Covid-19 vaccine, KD Cases in San Diego during Covid-19, and new research opportunities. Read the complete newsletter here: KD Newsletter-Summer2021....
THE DIAGNOSIS AND MANAGEMENT OF MULTISYSTEM INFLAMMATORY SYNDROME IN CHILDREN (MIS-C) WITH DR. ADRIANA TREMOULET Summary Four weeks after a COVID exposure, children may not be entirely in the clear. MIS-C is a post-infectious inflammatory state that affects pediatric...
Researcher: Kawasaki Disease Spike In San Diego Likely Tied To Aerosol Particles An unusual and potentially deadly disease is making a growing number of San Diego County children sick, and researchers say it’s caused by something in the air....
Fever, conjunctivitis, rash, and belly pain KD case study written by two medical doctors highlights that children with KD and prominent GI (gastrointestinal (GI) symptoms of abdominal pain and diarrhea) or hepatobiliary (having to do with the liver plus...
Treatment Intensification in Patients With Kawasaki Disease and Coronary Aneurysm at Diagnosis Coronary artery aneurysms (CAA) are a serious complication of Kawasaki disease. Treatment with intravenous immunoglobulin (IVIg) within 10 days of fever onset reduces the risk of CAA...
Etanercept With IVIg for Acute Kawasaki Disease: A Randomized Controlled Trial Dr. Michael A. Portman and colleagues have published the results of a clinical trial showing benefits by etanercept (brand name Enbrel) for Kawasaki Disease patients. The results were...
Groundbreaking research at Seattle Children’s Hospital to help diagnose rare health condition SEATTLE – A groundbreaking researching happening right here in Washington is giving doctors new hope at better treating and diagnosing a rare health condition called Kawasaki disease....
New study aims to better understand Kawasaki disease BALTIMORE – A new study looks to define the antibody characteristics, including clonality, of plasmablasts during Kawasaki Disease (KD). Findings from the study will be presented during the Pediatric Academic Societies...
New study identifies a previously unrecognized virus from a known virus family that has caused an infection in KD children during the onset of symptoms The results of a new study conducted by Dr. Anne Rowley and her team...
Safety of Apixaban on pediatric heart disease on the prevention of embolism People with certain types of heart disease may need to take medication to prevent their blood from clotting. That medication is called an anticoagulant or a blood...
This article was published by Jackie Carr via UC San Diego Health on August 6, 2018. Researchers Identify Potential Diagnostic Test for Kawasaki Disease For the first time, researchers at University of California San Diego School of Medicine...
Jamie Dukat’s KD Strong Story | How I transitioned from pediatric to adult cardiology How old were you when you were diagnosed with KD? If you were old enough to remember, how did you feel? What was your reaction...
Chance’s Kawasaki Disease Story Chance was diagnosed with Kawasaki Disease when he was 3 years old. He developed a fever on May 31, 2006, and was treated for a viral infection at a local urgent care clinic. Over the...
Calen Page By: Jennifer Page A committed group of people in Big Rapids, Michigan, are working to raise funds to support KD Research in the Quest for a Diagnostic Test. For many children, having a diagnostic test is the...
My Kawasaki Disease Journey | 26 Years Post KD and Healthy! Written by: Kate Davila My name is Kate Davila, and I had Kawasaki disease (KD) 26 years ago when I was 15 years old. I hope that my...
The Jekums Family: Our KD Story Written by Sari Jekums Orange County, CA We began our journey with Kawasaki disease (KD) when my son was diagnosed four years ago. Even though my husband and I are both Registered...