2022 UCSD KD Parent Symposium Q&A Session Watch the annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center via the link below, or scroll down to read the transcribed questions and...
Watch the 2022- UCSD KD Parent Symposium (Virtual & In-Person Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually and in-person. Video Time Stamp Speaker...
What: UCSD 2022 Kawasaki Disease Parent Symposium When: Saturday, October 29, 2022, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research Center...
Ask the KD Experts: Are there any updates on the safety of the COVID-19 vaccine for children and adults with a history of Kawasaki disease? New inquiries regarding updates on the safety of the COVID-19 vaccine in children and...
Watch the 2021- UCSD KD Parent Symposium (Virtual Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually via Zoom. Video Time Stamp Speaker Topic 00:00:00...
What: UCSD 2021 Virtual Kawasaki Disease Parent Symposium When: Saturday, October 2, 2021, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research...
What: UCSD 2021 Virtual Kawasaki Disease Parent Symposium When: Saturday, October 2, 2021, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research...
Ask the KD Experts: Is the COVID-19 vaccine safe for children and adults with a history of Kawasaki disease? The following update was provided by Jane Burns, M.D. Professor and Director, Kawasaki Disease Research Center. We understand that there...
2020 UCSD KD Parent Symposium (Virtual Event) Q&A Session Watch the annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center via the link below, or scroll down to read the transcribed...
THE DIAGNOSIS AND MANAGEMENT OF MULTISYSTEM INFLAMMATORY SYNDROME IN CHILDREN (MIS-C) WITH DR. ADRIANA TREMOULET Summary Four weeks after a COVID exposure, children may not be entirely in the clear. MIS-C is a post-infectious inflammatory state that affects pediatric...
Ask the KD Experts: KD & COVID-19 Update The following update was provided by Jane Burns, M.D. Professor and Director, Kawasaki Disease Research Center. June 23, 2020 1. KD patients who are well, healthy people, with normal functioning hearts...
Dear KD Parents, There has been a lot of recent media attention regarding a pediatric inflammatory shock syndrome linked to COVID-19 that appears to affect a few patients who share some features of Kawasaki Disease, including coronary artery aneurysms...
Ask the KD Experts: KD & COVID-19 Latest News Dear KD Parents, We wanted to reach out to provide information and reassurance to our KD parents in light of new information that is emerging about children who develop a...
Ask the KD Experts: Biomarkers of Inflammation and Fibrosis in Kawasaki Disease Patients Years After Initial Presentation With Low Ejection Fraction Question: Can you please explain the results of a recent study published titled “Biomarkers of Inflammation and Fibrosis...
Ask the KD Experts: Kawasaki Disease and COVID-19 Question: Is my KD child more at risk to COVID-19 than the general population? Answer: Children who have had KD go on to be immunologically normal in their response to viruses,...
Ask the KD Experts: Kawasaki Disease and Z Scores Question: What is a Z score? Answer: A Z score normalized for body surface area represents how much larger (or smaller) a measured coronary artery internal diameter is compared to the...
Ask the KD Experts: Kawasaki Disease an Autoimmune Disease? Question: Is Kawasaki disease an autoimmune disease? Answer: The term “autoimmune” disease is used to describe diseases in which the primary immune response is to “self.” That means that the...
Ask the KD Experts: Kawasaki Disease and Long Term Effects Question: My daughter is now 12. She had Kawasaki disease when she was four years old. After treatment and the follow-up tests, they determined that she did not suffer...
Ask the KD Experts: Kawasaki Disease and Hearing Loss Question: Our son was diagnosed with KD January 2007, he was 2 years 9 months old. After presenting with all the symptoms was treated with IVIG on the fifth day....
Ask the KD Experts: Kawasaki Disease and Calcium Testing Question: I had KD when I was 2. I am now 22 and have had several weird heart issues that they weren’t identifiable with an echo since then. I was...
Ask the KD Experts: Kawasaki Disease and Vision Loss Question: I wanted to ask if you could please provide some feedback on vision loss due to KD. There’s been a story surfacing these past few days of a blind...
Ask the KD Experts: Kawasaki Disease and Vaccines Question: Hello. I was wondering if you can share any information regarding Kawasaki disease and immunizations after onset. My son is 16 years old. He had Kawasaki disease when he was...
Cookies 4 Kawasaki – KDF Youth Donates Items for Kawasaki Patients at Rady Children’s Hospital, San Diego In 2022, the KD Foundation’s KDF Youth organized Cookies4Kawasaki – a fundraiser raising money to make a difference in the lives of...
The Venice 6 – Event Recap The Venice 6 fundraising event held on Sunday, November 13, 2022, at Venice Beach, CA, benefitting the Kawasaki Disease Foundation, was super fun for all those who attended and had a fantastic turnout....
2022 UCSD KD Parent Symposium Q&A Session Watch the annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center via the link below, or scroll down to read the transcribed questions and...
Share your or your child’s experience with Kawasaki disease for a chance to have your story published in a book and/or website! Evan Grant, a senior Graphic Design student at UMass Dartmouth, invites YOU to participate in his semester-long...
Watch the 2022- UCSD KD Parent Symposium (Virtual & In-Person Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually and in-person. Video Time Stamp Speaker...
You are invited to join the 2022 Kawasaki Disease Parent Symposium! What: UCSD 2022 Kawasaki Disease Parent SymposiumWhen: Saturday, October 29, 2022, from 9 am to 12 pm PSTWho: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D....
What: The Venice 6 (3 mile option available) When: Sunday, November 13, 2022 9:00 AM 3:00 PM Where: Windward Plaza 1 Windward Avenue, Los Angeles, CA, 90291 The Last 6 is back with its annual fundraiser run benefiting the...
What: UCSD 2022 Kawasaki Disease Parent Symposium When: Saturday, October 29, 2022, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research Center...
Jamie Dukat’s KD Strong Story | How I transitioned from pediatric to adult cardiology How old were you when you were diagnosed with KD? If you were old enough to remember, how did you feel? What was your reaction...
Chance’s Kawasaki Disease Story Chance was diagnosed with Kawasaki Disease when he was 3 years old. He developed a fever on May 31, 2006, and was treated for a viral infection at a local urgent care clinic. Over the...
KDF See’s Candies Holiday Fundraiser KD Mom, Samantha Encinas, invites you to help raise funds to support the KDF’s mission via this online Yum-Raising Event! What: See’s Candies Holiday Fundraiser When: October 9, 2021 to December 3, 2021 Where: See’s Candies –...
What: UCSD 2021 Virtual Kawasaki Disease Parent Symposium When: Saturday, October 2, 2021, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research...
What: UCSD 2021 Virtual Kawasaki Disease Parent Symposium When: Saturday, October 2, 2021, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research...
2019 Kawasaki Disease Awareness Challenge Participant Results The Foundation thanks our 2019 KDAC challenge participants. We are grateful for YOUR support and appreciate the time and energy YOU dedicated to helping raise awareness and funds for Kawasaki disease. Together...
Calen Page By: Jennifer Page A committed group of people in Big Rapids, Michigan, are working to raise funds to support KD Research in the Quest for a Diagnostic Test. For many children, having a diagnostic test is the...
My Kawasaki Disease Journey | 26 Years Post KD and Healthy! Written by: Kate Davila My name is Kate Davila, and I had Kawasaki disease (KD) 26 years ago when I was 15 years old. I hope that my...
The 6th KD Summit of India/ 1st Annual Conference of the Kawasaki Disease Society of India Written by Dana Bell Fairfield, CA The 6th Kawasaki Disease Summit of India and the First Annual Conference of the Kawasaki Disease Society...
New Rochelle, NY: Bringing awareness to Kawasaki disease During the KDF’s 26 days of Kawasaki Disease Awareness campaign, KD mom, Danielle Foster contacted us for support in raising KD awareness. Danielle decided to host an awareness fundraiser for KD...
The Jekums Family: Our KD Story Written by Sari Jekums Orange County, CA We began our journey with Kawasaki disease (KD) when my son was diagnosed four years ago. Even though my husband and I are both Registered...
Event Recap: International Kawasaki Disease Symposium, Yokohama, Japan This past June 2018, 485 participants from 32 countries gathered in Yokohama, Japan for the 12th International Kawasaki Disease Symposium (IKDS). The 3 ½ day conference covered Kawasaki disease (KD) issues...
Recap of the KDF’s ‘To Save a Child’s Heart’ East Coast Gala The first east coast KDF gala was one to remember! And quite unexpectedly, the memories began even before our guests arrived. As we were setting up in...
KD Kids Healthy Recipe Corner Like every family, some mornings are busier than others, and when they are I like to throw one of these smoothies together before heading out the door. My husband, kids, and I all love...
KD Kids Healthy Recipe Corner It’s the end of summer and fall is on its way! Fall means many different things – new school supplies and clothes, the leaves on the trees displaying their beautiful changing colors, cooler weather,...
Kawasaki Disease Rates Dropped During COVID-19 Pandemic A study published by the Jama Network Open Pediatrics found that cases of Kawasaki disease (KD) in the United States dropped by 28% during the Covid-19 shelter in place orders. The decrease...
Formal plans needed to support teens with Kawasaki disease in transition to adult care According to the American Heart Association, an increasing number of children who developed coronary artery aneurysms from Kawasaki disease are becoming adults and require transitioning...
MIS-C and KD are on the same immune response continuum as COVID-19 A recent study revealed that MIS-C and KD are on the same immune response continuum as COVID-19, with MIS-C being a more severe version of the response...
KDF Newsletter April 2022, Volume 1, Issue 1 In this issue: 2022 Kawasaki Disease Awareness Campaign Results; KDF Founder & President; Gregory Chin’s Retirement; Union University College of Pharmacy KD Awareness Fundraiser; KDF Youth Highlights; Lisa Connelly Case Study:...
Gregory Chin, founder and president of the Kawasaki Disease Foundation, retires Under his leadership, the KD Foundation has donated over half a million dollars to KD research over the past 21 years. Gregory Chin, founder and president of the...
KDF Youth Highlights KDF Youth is a KD Foundation program created by youth for youth. The group was launched in September 2020 to increase Kawasaki Disease (KD) awareness among youth and teenagers. Since its inception, the group has met...
Over Half A Million Dollars Donated to Kawasaki Disease Research Thanks to YOU, we have contributed $532,000 to advancing KD research; most significantly, we provided a grant to the Kawasaki Disease Research Center at the University of California San Diego...
Kawasaki Disease Awareness Day is Today – Wednesday, January 26, 2022! Twelve years ago, the Kawasaki Disease Foundation requested to have January 26th designated as KD Awareness Day. Senator Jim Webb of Virginia and Daniel Inouye of Hawaii sponsored...
January 26th is National Kawasaki Disease Awareness Day Join the Kawasaki Disease Foundation in raising awareness for Kawasaki Disease from January 1st to 26th, 2022 How YOU can HELP: Be a part of the Wear Your Heart on Your...
Watch the 2021- UCSD KD Parent Symposium (Virtual Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually via Zoom. Video Time Stamp Speaker Topic 00:00:00...
Infliximab versus second intravenous immunoglobulin for treatment of resistant Kawasaki disease in the USA (KIDCARE): a randomised, multicentre comparative effectiveness trial Summary Background Although intravenous immunoglobulin (IVIG) is effective therapy for Kawasaki disease, 10–20% of patients have recrudescent fever...
Same Treatment Tested for Kids with Kawasaki Disease and Rare COVID-19 Reaction In a pair of new studies, published online October 26 and August 31, 2021, two collaborating teams of researchers at University of California San Diego School of...
To ALL our KD Community who helped raise Kawasaki disease awareness on the 11th National KD Awareness Day, January 26, 2021 – THANK YOU! Together, we helped raise awareness of KD by sharing symptoms and KD facts posts, sharing...
2020 UCSD KD Parent Symposium (Virtual Event) Q&A Session Watch the annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center via the link below, or scroll down to read the transcribed...
Watch the 2020- UCSD KD Parent Symposium (Virtual Event) Annual Kawasaki Disease Parent Symposium hosted by the University of California San Diego, Kawasaki Disease Research Center. The event was held virtually via Zoom. Video Time Stamp Speaker Topic 0:05:15...
My son’s fight with Kawasaki disease taught me to trust my instincts (CNN)The latest pandemic news has many parents on edge. If we didn’t have enough to worry about already during this pandemic, parents now have another dire warning...
Qualifying for Disability Benefits with Kawasaki Disease By: SSD Help Twitter: @DisabilityGuide If your child has Kawasaki disease (KD) and you are finding that he or she is having difficulty in school and medical bills are piling up, you...
Researcher: Kawasaki Disease Spike In San Diego Likely Tied To Aerosol Particles An unusual and potentially deadly disease is making a growing number of San Diego County children sick, and researchers say it’s caused by something in the air....
New Rochelle, NY: Bringing awareness to Kawasaki disease During the KDF’s 26 days of Kawasaki Disease Awareness campaign, KD mom, Danielle Foster contacted us for support in raising KD awareness. Danielle decided to host an awareness fundraiser for KD...
Recap of the KDF’s ‘To Save a Child’s Heart’ East Coast Gala The first east coast KDF gala was one to remember! And quite unexpectedly, the memories began even before our guests arrived. As we were setting up in...
This article was published by Jackie Carr via UC San Diego Health on August 6, 2018. Researchers Identify Potential Diagnostic Test for Kawasaki Disease For the first time, researchers at University of California San Diego School of Medicine...
Cookies 4 Kawasaki – KDF Youth Donates Items for Kawasaki Patients at Rady Children’s Hospital, San Diego In 2022, the KD Foundation’s KDF Youth organized Cookies4Kawasaki – a fundraiser raising money to make a difference in the lives of...
Ellen Xu – KDF Youth Board President Honored as One of 25 Most Remarkable Teens in San Diego, CA One of our very own KDF volunteers, Ellen Xu, is definitely a ‘remarkable’ teen! San Diego leaders gathered together recently...
KD Awareness Advocates: Mckenzie Graham In the Fall of 2019, the Foundation was approached by Mckenzie Graham and her mother who expressed interest in contributing to KD awareness. Mckenzie’s younger sister, Savannah, was diagnosed with Kawasaki disease at the...
Dear KD Families, It’s with a heavy heart that we share news of the passing of Donna Collins after a long battle with cancer. For those of you who didn’t know Donna, it’s our honor to share a little...
KD Awareness Advocates: Michael Lau My name is Dr. Michael Lau, and I’m a licensed pharmacist currently completing a Post-Graduate Year 1 (PGY-1) Residency at NYU Winthrop Hospital. Throughout the course of the year, residents complete rotations in various...
Recap of the KDF’s ‘To Save a Child’s Heart’ East Coast Gala The first east coast KDF gala was one to remember! And quite unexpectedly, the memories began even before our guests arrived. As we were setting up in...
KD Parent Spotlight: Aubry Shackelford At the age of five, my daughter Allison was diagnosed with Kawasaki Disease. Like many other KD parents, her mother Jean had to become relentless in her pursuit of a diagnosis when initial visits...
Dr Michael Portman Explains How Cardiac Disease Differs Between Pediatric, Adult Patients During an interview at the 2022 American Heart Association Scientific Sessions in Chicago, the different types of cardiac diseases that present in pediatric patients vs adult patients...
Pharmacy alumni and faculty work with research team to develop North America’s first test to predict Kawasaki disease A new tool under development by University at Buffalo researchers could one day help clinicians better predict resistance to immunoglobulin therapy...
Kawasaki Disease Rates Dropped During COVID-19 Pandemic A study published by the Jama Network Open Pediatrics found that cases of Kawasaki disease (KD) in the United States dropped by 28% during the Covid-19 shelter in place orders. The decrease...
MIS-C and KD are on the same immune response continuum as COVID-19 A recent study revealed that MIS-C and KD are on the same immune response continuum as COVID-19, with MIS-C being a more severe version of the response...
Sudden cardiac death in adult with prior history of Kawasaki disease without coronary artery involvement: A case report Lisa Connelly was 37 when she passed away from a massive heart attack on November 29, 2015. The pathology report showed...
Infliximab versus second intravenous immunoglobulin for treatment of resistant Kawasaki disease in the USA (KIDCARE): a randomised, multicentre comparative effectiveness trial Summary Background Although intravenous immunoglobulin (IVIG) is effective therapy for Kawasaki disease, 10–20% of patients have recrudescent fever...
Same Treatment Tested for Kids with Kawasaki Disease and Rare COVID-19 Reaction In a pair of new studies, published online October 26 and August 31, 2021, two collaborating teams of researchers at University of California San Diego School of...
What: UCSD 2021 Virtual Kawasaki Disease Parent Symposium When: Saturday, October 2, 2021, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research...
What: UCSD 2021 Virtual Kawasaki Disease Parent Symposium When: Saturday, October 2, 2021, from 9 am to 12 pm PST Who: Jane C. Burns, M.D. Director, UCSD KD Research Center | Adriana Tremoulet, M.D. Associate Director, UCSD KD Research...
Researcher: Kawasaki Disease Spike In San Diego Likely Tied To Aerosol Particles An unusual and potentially deadly disease is making a growing number of San Diego County children sick, and researchers say it’s caused by something in the air....
Fever, conjunctivitis, rash, and belly pain KD case study written by two medical doctors highlights that children with KD and prominent GI (gastrointestinal (GI) symptoms of abdominal pain and diarrhea) or hepatobiliary (having to do with the liver plus...
Treatment Intensification in Patients With Kawasaki Disease and Coronary Aneurysm at Diagnosis Coronary artery aneurysms (CAA) are a serious complication of Kawasaki disease. Treatment with intravenous immunoglobulin (IVIg) within 10 days of fever onset reduces the risk of CAA...
Etanercept With IVIg for Acute Kawasaki Disease: A Randomized Controlled Trial Dr. Michael A. Portman and colleagues have published the results of a clinical trial showing benefits by etanercept (brand name Enbrel) for Kawasaki Disease patients. The results were...
Groundbreaking research at Seattle Children’s Hospital to help diagnose rare health condition SEATTLE – A groundbreaking researching happening right here in Washington is giving doctors new hope at better treating and diagnosing a rare health condition called Kawasaki disease....
New study aims to better understand Kawasaki disease BALTIMORE – A new study looks to define the antibody characteristics, including clonality, of plasmablasts during Kawasaki Disease (KD). Findings from the study will be presented during the Pediatric Academic Societies...
New study identifies a previously unrecognized virus from a known virus family that has caused an infection in KD children during the onset of symptoms The results of a new study conducted by Dr. Anne Rowley and her team...
The 6th KD Summit of India/ 1st Annual Conference of the Kawasaki Disease Society of India Written by Dana Bell Fairfield, CA The 6th Kawasaki Disease Summit of India and the First Annual Conference of the Kawasaki Disease Society...
Safety of Apixaban on pediatric heart disease on the prevention of embolism People with certain types of heart disease may need to take medication to prevent their blood from clotting. That medication is called an anticoagulant or a blood...
Pharmacy alumni and faculty work with research team to develop North America’s first test to predict Kawasaki disease A new tool under development by University at Buffalo researchers could one day help clinicians better predict resistance to immunoglobulin therapy...
MIS-C and KD are on the same immune response continuum as COVID-19 A recent study revealed that MIS-C and KD are on the same immune response continuum as COVID-19, with MIS-C being a more severe version of the response...
Infliximab versus second intravenous immunoglobulin for treatment of resistant Kawasaki disease in the USA (KIDCARE): a randomised, multicentre comparative effectiveness trial Summary Background Although intravenous immunoglobulin (IVIG) is effective therapy for Kawasaki disease, 10–20% of patients have recrudescent fever...
Same Treatment Tested for Kids with Kawasaki Disease and Rare COVID-19 Reaction In a pair of new studies, published online October 26 and August 31, 2021, two collaborating teams of researchers at University of California San Diego School of...
Researcher: Kawasaki Disease Spike In San Diego Likely Tied To Aerosol Particles An unusual and potentially deadly disease is making a growing number of San Diego County children sick, and researchers say it’s caused by something in the air....
Fever, conjunctivitis, rash, and belly pain KD case study written by two medical doctors highlights that children with KD and prominent GI (gastrointestinal (GI) symptoms of abdominal pain and diarrhea) or hepatobiliary (having to do with the liver plus...
Treatment Intensification in Patients With Kawasaki Disease and Coronary Aneurysm at Diagnosis Coronary artery aneurysms (CAA) are a serious complication of Kawasaki disease. Treatment with intravenous immunoglobulin (IVIg) within 10 days of fever onset reduces the risk of CAA...
Etanercept With IVIg for Acute Kawasaki Disease: A Randomized Controlled Trial Dr. Michael A. Portman and colleagues have published the results of a clinical trial showing benefits by etanercept (brand name Enbrel) for Kawasaki Disease patients. The results were...
Groundbreaking research at Seattle Children’s Hospital to help diagnose rare health condition SEATTLE – A groundbreaking researching happening right here in Washington is giving doctors new hope at better treating and diagnosing a rare health condition called Kawasaki disease....
New study aims to better understand Kawasaki disease BALTIMORE – A new study looks to define the antibody characteristics, including clonality, of plasmablasts during Kawasaki Disease (KD). Findings from the study will be presented during the Pediatric Academic Societies...
Share your or your child’s experience with Kawasaki disease for a chance to have your story published in a book and/or website! Evan Grant, a senior Graphic Design student at UMass Dartmouth, invites YOU to participate in his semester-long...
Jamie Dukat’s KD Strong Story | How I transitioned from pediatric to adult cardiology How old were you when you were diagnosed with KD? If you were old enough to remember, how did you feel? What was your reaction...
Chance’s Kawasaki Disease Story Chance was diagnosed with Kawasaki Disease when he was 3 years old. He developed a fever on May 31, 2006, and was treated for a viral infection at a local urgent care clinic. Over the...
Calen Page By: Jennifer Page A committed group of people in Big Rapids, Michigan, are working to raise funds to support KD Research in the Quest for a Diagnostic Test. For many children, having a diagnostic test is the...
My Kawasaki Disease Journey | 26 Years Post KD and Healthy! Written by: Kate Davila My name is Kate Davila, and I had Kawasaki disease (KD) 26 years ago when I was 15 years old. I hope that my...
The Jekums Family: Our KD Story Written by Sari Jekums Orange County, CA We began our journey with Kawasaki disease (KD) when my son was diagnosed four years ago. Even though my husband and I are both Registered...