KDF Newsletter Archive
KDF Newsletter | Fall 2024
In This Issue: 1. Treating Resistant KD: Evidence Update for Parents and Clinicians; 2. Recap: 14th International KD Symposium (IKDS); 3. Watch the 2024 IKDS Parent Conference: Navigating KD Together; 4. Watch On-Demand: 2024 Annual KD Parent Symposium; 5. Feedback Survey: 2024 Annual KD Parent Symposium; 6. Meet Ava Quinn: KDF’s Newest Intern; 7. See’s Candies Winter Fundraiser; 8. UCSD Adult Kawasaki Disease Study Needs Control Participants
KDF Newsletter | Summer 2024
In This Issue: 1. UCSD Adult Kawasaki Disease Study Needs Control Participants; 2. Cardiac Clinic at SickKids Needs Online Survey Participants; 3. Announcing the Dr. Tomisaku Kawasaki Memorial Scholarship Recipients; 4. Upcoming Virtual Events: Navigating Kawasaki Disease Together: A Dialogue with Experts for Patients and Caregivers; UCSD Annual Kawasaki Disease Parent Symposium; 5. Host an Online Fundraiser for KDF; 6. KDF is Hiring a Communications Intern (Stipend-Based Position); 7. KDF is Seeking Interns for the KDF Youth Fall Internship Program (Volunteer Position).
KDF Newsletter | April 2024
In This Issue: 1. 13th National Kawasaki Disease Awareness Day; 2. KD Cases Increase at Rady Children’s Hospital, San Diego; 3. Pharmacogenomics of IVIG Response in KD; 4. Watch the 2023 UCSD KD Parent Symposium; 5. Paige Garnica’s Heart Surgery Story; 6. KDF Youth Highlights – Kate Xu, Daily Point of Light Awardee; 7. Dr. Tomisaku Kawasaki Memorial Scholarship; 8. 2024 International KD Symposium Montreal, Canada.
October 2023, Volume 1, Issue 1
In this issue: 1. KD Research Updates — KD Aneurysms & Transition of Care; 2. Dr Portman Explains How Cardiac Disease Differs Between Pediatric, Adult Patients; 3. Upcoming KD Events: 2023 UCSD KD Parent Symposium; 1st International Kawasaki Disease Registry & EUROKiDs Joint Meeting; 2024 International KD Symposium, Montreal, 4. KDF Youth Highlights – Cookies 4 Kawasaki, 5. Dr. Tomisaku Kawasaki Memorial Scholarship.
April 2022, Volume 1, Issue 1
In this issue: 2022 Kawasaki Disease Awareness Campaign Results; KDF Founder & President; Gregory Chin’s Retirement; Union University College of Pharmacy KD Awareness Fundraiser; KDF Youth Highlights; Lisa Connelly Case Study: Sudden Cardiac Death in Adult With Prior History of KD Without Coronary Artery Involvement; 2021 UCSD KD Parent Symposium; Take Action: Nominate a KDF Champion.
November 2020, Volume 1, Issue 1
In this issue: 2020 Kawasaki Disease Awareness Campaign Results; 2019 UCSD KD Parent Symposium; Ask the KD Experts: Study on Scarring in the Heart Muscle; Qualifying for Disability Benefits with Kawasaki Disease; In Memoriam: Donna Collins; KD Advocates: Michael Lau; KD Advocates: McKenzie Graham; Take Action: Online Fundraising.
October 2019, Volume 3, Issue 3
In this issue: 2019 KDAC: Participant Results; The “Tote Bag” Project; KD Stories: 26 Years Post KD and Healthy!; Meet Our Board Members: Karin Wicker; Take Action: Online Fundraising; Upcoming Events; Current KD Research Studies.
June 2019, Volume 2, Issue 2
In this issue: KD Stories: A Father’s Struggle; KD Awareness Challenge: Bike, Run, Walk or Hike to Help Save KD Kid’s Hearts; New KD Study at Rowley Laboratory; Meet Our Board Members: Matt Nelson; Get Involved: Online Fundraiser; Volunteer With The KDF; Upcoming Events; Current KD Research Studies.
March 2019, Volume 1, Issue 1
In this issue: The Jekums Family: Our KD Story; New Rochelle, NY: Bringing awareness to KD; The 6th KD Summit of India/ 1st Annual Conference of the KD Society of India; Breastfeeding and vitamin D supplementation reduce the risk of Kawasaki disease in a German population-based case-control study; Health Officials Warn Parents, Doctors Of Potentially Deadly Kawasaki Disease; Meet Our Board Members: Gregory Chin, KDF President; Current KD Research Studies.
September 2018, Volume 1, Issue 1
In this issue: Latest News: Researchers Identify Potential Diagnostic Test for KD; Event Recap: International KD Symposium, Yokohama, Japan; Event Recap: KDF ‘To Save a Child’s Heart’ East Coast Gala; KD Parent Spotlight: Aubrey Shackelford; KDF Health Corner: Cheerios Applesauce Muffins Recipe; Announcements and Upcoming Events; About the KDF.
March 2014, Volume 2, Issue 2
In this issue: Letter From The President; 5th Annual To Save a Child’s Heart Gala Recap; To Save a Child’s Heart Gala Photo Gallery; 2013 Kawasaki Disease Parent Symposium at UCSD; Kawasaki Disease and Pregnant Women; Heart Healthy Recipe; Online Fundraising; 4th National Kawasaki Disease Awareness Day; CDC Petition- Start Documenting Cases of KD in The United States; Updates From The Kawasaki Disease Research Center; KD Calendar of Events and Contact Information.
October 2013, Volume 2, Issue 1
In this issue: Letter From The Editor; KD Families: Their Stories; To Save a Child’s Heart Gala Information; KD Medical News; Helping Kids Develop Healthy Habits; Heart Healthy Recipe; Meet Your KDF Board Members; KD Calendar of Events and Contact Information.
April 2012, Volume 1, Issue 4
In this issue: Letter From The Editor; Gala Recap; Kawasaki Disease: Researchers Find Surprising Link to Wind Patterns; KD Families: Their Stories; Exercise for a Better Life and A Healthier Heart!; Heart Healthy Recipes; Epidemiology of Kawasaki Disease – Worldwide Numbers; Ask The Experts; KD Calendar of Events and Contact Information.
March 2012, Volume 1, Issue 3
In this issue: Letter From The Editor; Gala Recap; Kawasaki Disease: Researchers Find Surprising Link to Wind Patterns; KD Families: Their Stories; Ask The Experts; KD Calendar of Events and Contact Information.
July 2011, Volume 1, Issue 2
In this issue: Letter From The Editor; Save the Date!; KD In The News!; KD Families: Their Stories; Ask The Experts; KD Calendar of Events and Contact Information.
March 2011, Volume 1, Issue 1
In this issue: KD Gala 2010 recap; KD Fund Event Recap & News; KD Survivors: Their Stories; Ask the Experts; KD Calendar of Events and Contact Information.