Dear Patient/Guardian,
The Cardiac Clinic at SickKids is conducting a brief survey with Kawasaki Disease (KD) patients and families. As part of a quality improvement initiative, this survey has been provided to various online forums and organizations for distribution.
The purpose of this survey:
Your unique experiences living with a KD diagnosis are important to address any potential gaps in KD management. This survey aims to understand current gaps related to KD education, patient- and family-centered resources, and transition to adult care.
This study involves completing:
A brief one-time online survey. This will take approximately 15 minutes to complete. No other involvement or follow-up contact is required. Your responses will be kept strictly confidential and secure.
The results of this survey will:
Information from this survey will be helpful in developing educational resources and timely age appropriate preparation, and seamless transition to adult care.
Your participation in this survey is voluntary. You do not have to participate if you do not want to. If you decide to participate but change your mind, you can drop out at any time without giving a reason.
A summary of the findings from this survey will be posted on the KD Foundation websites.
Please note that this survey will be available until August 31, 2024.
Thank you for considering participation. If you are interested in participating in this survey, please click the following link https://redcap.link/ikdrsurvey2024.