Su papel en la investigación
Los estudios de investigación necesitan voluntarios para comprender la enfermedad de Kawasaki. Aunque puede que no sea posible participar en un estudio de investigación para todos los pacientes con EK, los estudios de investigación actuales necesitan su ayuda. Al inscribirse en un estudio, puede ayudar a acelerar los avances en el tratamiento de la enfermedad de Kawasaki. Para comenzar, la Fundación ofrece una lista de estudios de investigación activos. Lea la información a continuación para ver si califica y considere inscribirse en un estudio de investigación.
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Adult Kawasaki Disease Study (Participants with a history of KD and no history of KD are needed)
The Kawasaki Disease Research Center at the University of California, San Diego, is looking for participants for its Adult Kawasaki Study. This longitudinal study aims to investigate the long-term effects of KD in adults. The information obtained from the health questionnaires could provide valuable insights into the long-term outcomes for KD patients.
Requirements:
– Participants must be 18 years of age or older.
– Must have had Kawasaki Disease in childhood.
– Must never have had Kawasaki Disease.
Participation in the study involves:
– Completing two online health questionnaires.
– Optional blood draw for participants in San Diego, CA.
If you are interested in participating, please email adultkd@health.ucsd.edu.
Kawasaki Disease Genetic Study
The Kawasaki Disease Research Center at the University of California, San Diego is studying the genes of patients with Kawasaki disease and their biologic parents to see how children are genetically predisposed to developing the disease.
Requirements:
– Must have had Kawasaki Disease.
– Biological parents must participate in study.
To learn more about this study and how to participate, email kdgenetics@ucsd.edu.
Ensayo de atorvastatina
The Kawasaki Disease Research Center at the University of California, San Diego is recruiting patients for a clinical trial to evaluate the treatment of children with acute Kawasaki disease and coronary artery disease with atorvastatin.
Requirements:
– Must have had acute Kawasaki Disease.
– Must have had coronary artery disease.
If you are a parent of a child with Kawasaki disease and would like to learn more about this study, please call the Hospital operator at 858-576-1700 and ask for the Kawasaki disease doctor.
Evaluación de la prueba diagnóstica de KD.
The Kawasaki Disease Research Center at the University of California, San Diego is recruiting patients with acute Kawasaki disease and other rash-fever illnesses that come through the Rady Children’s Hospital San-Diego Emergency Department to evaluate a diagnostic test for Kawasaki disease.
Requirements:
– Must have had acute Kawasaki Disease and other rash-fever illnesses.
– Must be a patient through the Rady Children’s Hospital San Diego Emergency Department.
If you are a parent of a child with Kawasaki disease and would like to learn more about this study, please call the Hospital operator at 858-576-1700 and ask for the Kawasaki disease doctor.
Kate Dávila Miembro de la Junta Directiva de KDF
Desde mi diagnóstico hace 26 años, ha habido muchos descubrimientos nuevos sobre la EK, pero no se ha encontrado ni la causa ni un tratamiento probado y verdadero. Para avanzar en la investigación de la EK, se necesitan participantes. Personalmente, me he ofrecido como voluntario para cualquier estudio sobre la enfermedad de Kawasaki que se haya ofrecido y para el que he sido elegible como una forma de ayudar en futuras investigaciones.